I keep reading about people getting like 8 lymphnodes removed at once and 5 ending up as cancerous. I know some of my mom's friends who have had it done that were out running a few days later. I was diagnosed with papillary thyroid cancer over the summer and received a total thyroidectomy and bilateral neck dissection two months ago. mcg of synthyroid. I was diagnosed by chance, I was actually post op on back surgery and I mentioned to my neuro the pain in the back of my neck, he ordered a soft tissue MRI and this was discovered. Getting up and moving was huge - really helped shake off the remaining cobwebs from the anesthesia. For this is a forever journey I am on! was it there all along? I underwent a thyroidectomy and extensive bilateral neck dissection two years ago. September 13th I had my follow-up at Madigan for my ear surgery, I still have dizziness so they scheduled me for a follow-up hearing test as well as a CT scan and some Vestibular (Balance) training. She explained, again, that the surgery before me had become unusually complicated and apologized for the wait. "Neck pain and discomfort scale" and "Patient and Observer Scar Rating Scale" were applied again in both phone calls. That was a Tuesday. Suffice to say, I was very disoriented for about the next 10 minutes. She reported left upper lid drooping and showed a recent picture with only the right side of her face flushed in a hot summer day (Figure 1, upper panel). I had a Total Thyroidectomy around 9 weeks ago for FVPTC, then they ran me hypothyroid for 6 weeks and pushed TSH over 100, then did my RAI 3 weeks ago. They ran blood tests, no infection or blood clots . The doctor says it might not ever be the same. After hours emergency: A/Professor Miller's mobile - emergency only please. Suffice to say, I was a total and complete mess. A complete neurologic examination confirmed otherwise normal cranial nerves. Answer: Skin laxity after thyroid surgery. On March 8th I had a full eye check and they gave me a new prescription for glasses along with noting that I should have more frequent eye checks (6 months a year) do to the fact that thyroid issues can cause vision changes. Once your thyroid is removed you are now . 4) They plan to suppress my TSH which will make me Hyperthyroid. But I was informed that they would be delay in visits while I was recovering from radiation treatment. But, on leaving the hospital I was told to come to the doctor's office in a week for my replacement prescription. Also we will have to delay the sleep Apnea testing till after I get my vestibular training done and I can sleep on my back and side. Regarding the pain levels and my voice. So, I might be called to come in early. She kind of blew me off although she did do a thyroid TSH test and it was "normal". Mind you, they were all very polite, but they were all very firm that they don't do robotic assisted surgery via the arm pit if it is either cancer or if the nodule is greater than 1cm; so I was two for two in not getting robotic assisted surgery as mine was both cancer and greater than 1cm. I will admit it defiantly made me dizzy but I was able to safely drive to work afterwards. At about 6:45pm the anesthesiologist came in, asked a few questions and said he was hoping for my surgery to start at around 7pm. Keywords: On May 14th I went back to Madigan for follow-up CT scans. Because I had such an intense spread, my surgical experience was a bit different than others. 3) Met with Surgeon and he said, the mass on right was big enough that it needs to come out weather cancer or not . so according to the ultrasound write up surrounding lyphnodes were normal but no film existed. I had a softball size tumor and didn't even know it was there, it makes me angry that I didn't, after It was pointed out to me I could actually palm the mass as I swallowed. Removing lymph nodes in the neck (lymph node dissection). Soon after the diagnosis, I underwent total thyroidectomy with right lateral compartment and central compartment dissection on December 28, 2020. J Minim Access Surg. If I can be as much of an emotional and psychological mess as I was and get through it I promise you will be just fine. It continued for maybe a couple of weeks and always took me by surprise. On October 4th I had my first appointment with Su., the nutritionist, and she told me that looking at what lab results were in the system that my calcium, magnesium and potassium are all low. Just seems like order of operations has been a complete mess. It's a scary place I don't really want to go back to. I've read posts on this board from people who say they've met with doctors who were evasive about answering certain questions. Hi to give you a little history, in Feb 2014 I found a nodule on my right side of my thyroid byopsies and scans done I was told it was fine nothing to worry about 1 month later I get a pain on my right side scan done I have a nodule on my right overy the advice given at the time wad to remove the right overy but it was my choice as to whether or not I would opt for both to be removed this was a tough choice as a radical meopause was to follow I was 48 at the time however this is where things get very interesting on the Tuesday before my overy removal I ruptured a ligament in my left ankle this was in June op put off until cast off and I was walking around log story short did op in late August and nodule was gone I was delighted and very relieved and thanked god for my lucky escape I'm self employed and I had never been incompassatated before off I went to take control of my life again my ankle never fully recovers I have a cronic pain in I'm neck with tingling down my right arm visited my GP regulary who's best advice was to have an anti depressent which I refused went to a chiropractor as a last resort she was excellent she saved my soul on the spot she told my I needed an mri and an appointment with a nurosurgen immediately 2 weeks later I meet my nourosurgen and I have a very serious condition since I had rip tured my ligament I had also injured my c5 c6 cervical spine and needed to be operated on straight away but my nourosurgen wanted to know who was looking after my thyroid no one was as they had said it was nothing to worry about saw another surguen mor scans mor byopsies the long and the short of it was I had neck surgery in june 2015 right thyroidectomy September 2015 I had micto papillary carcinoma because it was micro no treatment was deemed necessary I had put on alot of weight and thankfully I started to loose it fast forward six months to frebruary and my husband say that lump is growing again I hadn't even noticed myself more scans more byopsies more doctors I have a new nodule in my left side byopsie was incunclusive Doctor wanted to do surgery in may I refused he suggested July I refused again I couldn't face another Summer like the last 2 surgery done on the first of September no results yet as I'm not seeing my surguen until 5th of October I'm hoping this is a good sign so I had 3 ops in less then a year in the same neck area I'm in alot of pain that's from my disc fusion my thyroid area is just very tender I'm taking eltroxin 75mg calcichew and magnesium daily nows the thing I eat very healthy I'm still putting on weight I have very little energy I can cook a good dinner but that is about all I have no interest in work or am I even thinking of going back I have developed a pain in my back teeth very annoying I have a pain in my tight hip (where it all started) and now I'm afraid I may have another nodule on my overy I'm afraid to visit my GP my question is this they are fairly sure these nodules are estrogen fueled but they won't do anything to supress it and this has me worried are they going to do more treatment I don't know I think I would prefer if they did because knowing my luck I will get another nodule on the remaining tissue anyone have any ideas I told them I had good insurance and that I'd take care of the bill after surgery (which is the arrangement I had with every other service provider for my thyroid cancer). Below are general instructions for patients who have had thyroid or parathyroid surgery. They placed an IV line and took some blood samples. Just allow some water to run over the incision site and cleanse it. The patient was diagnosed with Horners syndrome, a disorder characterized by pupil constriction, eyelid drooping, eye protrusion and lack of sweating on one side of the face caused by damage of the ipsilateral cervical sympathetic chain. In January I was beginning to have a hypersensitive gag reflex. Numbness or tingling of fingers, toes, or around the mouth. Two things which haven't gone away, and bugging me greatly are: and 6mm papillary carcinoma w/ adjacent 2-3mm papillary carcinoma another section 6mm papillary carcinoma and right parathyroid lymph node with thyroid carcinoma 8mm. It is estimated that 70% of patients with Horners syndrome after thyroidectomy will have permanent damage or incomplete recovery while the remaining 30% will completely recover between 5 to 15 months after surgery. He said I was drenched on my back, and at that point I'd had all I could take of that plastic and paper gown and it came off me and onto the table. The nurse offered me some jello, and that wasn't quite as bad as the water, but it was no picnic either. Wednesday and Thursday I continued to improve. I have friends that "had a friend that went through this and they are just fine". Before my thyroidectomy I experienced ear pain on and off, where it felt like a sharp, stabbing pain around my left ear. Two weeks ago I wrote a post about my extreme anxiety preparing for a total thyroidectomy and central neck dissection. That's a nice way of saying they put it in a neck wrinkle. Complementary and alternative therapies for back pain II. Clipboard, Search History, and several other advanced features are temporarily unavailable. You may need a thyroidectomy if you have thyroid cancer or a growth on your . I got 57mci of RAI. So I went on my low iodine diet (lid) for 2 weeks - I screwed up and had been using coconut milk with carageenan in it so I had to do lid for two more weeks! On Feb 25th I had the first visit to mental health but do to the fact that my hearing was as bad as it was along with the recovering from surgery I was rescheduled for a later time. The last 2 days he has been dizzy, lightheaded. Next for me is probably clinical trials for this lung stuff + more lymph node removal down the line since those are growing back, but for 95% of you that's not something you'll be having to deal with:) But basically my point in all this is that it doesn't have to be as scary as it's sometimes made out to be. Follow-up of the patients with the scales applied in the experimental group were also performed to the control group at the same intervals. Neck stretching exercises done immediately after a total thyroidectomy reduce short-term neck pain and disability symptoms. The tonsillectomy was pure hell! So, here is a more detailed experience of what just the thyroidectomy was like. I know that there is nothing I could have done to control the anxiety, I guess I'm just poorly wired that way or it is a defense mechanism. My biggest node was 3.5cm, with a couple other in the 2-3cm range, plus ~30 cancerous lymph nodes. Exercise therapy for office workers with nonspecific neck pain: a systematic review. I was diagnosed with a large thyroid mass Dec 2009 Bremerton Naval Hospital in Jan 2010 they determined the mass was follicular cells but could not determine by fine needle aspiration if it was cancerous or not but since it was making it hard to breath they decided to operate to remove my right side thyroid this happened on Feb 22 2010. They both gave me their reasons why. Argue with people or agree with people, agree to disagree if that's what it takes to get you through this. The surgery went well but do to low calcium and magnesium levels (parathyroid(s) where not fully functioning) I was kept in the hospital for 2 days to ensure my parathyroids were maintaining proper levels. Chronic postoperative pain exists in varying degrees for every type of surgery. Have a wonderful holiday season and thank you again so much to this board for existing. Within half an hour I was being wheeled to the elevator to head down to the first floor. Overall the pain wasn't terrible. Injury: Trauma and other injuries can damage muscles, ligaments, disks, vertebral joints and nerve roots in your spinal cord and lead to neck pain. The ThyCa: Thyroid Cancer Survivors' Association Support Community connects patients, families, friends and caregivers for support and inspiration. Your health care provider may advise using sunscreen to help keep the scar from being noticeable. So not going to lie, recovery from that absolutely sucked for about 10 days - lots of dizziness, tiredness, general throat and neck pain and uncomfortableness - and I didn't get my drains out for 2 weeks post surgery, which was another great addition to such an extensive surgery. NSAIDs and duloxetine was not effective for these symptoms. Meeting went good although it was just me S. Cheryl and the leader of the group this time normally they have a few others. As a complete aside, that bair paws gown they'd put me under was starting to heat up like turkey in a browning bag. Would you like email updates of new search results? Chyle leak is a rare complication of thyroid surgery. Should other lymphnodes in the .7mm range be suspect as well? This close anatomical relationship with the thyroid makes the sympathetic trunk and the middle cervical ganglion vulnerable during thyroidectomy, especially when performed with a central neck dissection for metastatic nodes. The site is secure. NEVER do this! Also on the 4th I have a physical therapy appointment with one of the technicians and he did another wonderfully painfully session but the next 2 days there was basically no knee pain. I have experienced significant hairfall, slight acne and irreparable dry skin. I asked if I could turn my head (I have no idea why I asked if that was OK, I just did) and I was told, If you can tolerate it. Well low and behold, I am still very radioactive after 8 days to anyone closer than 4'. Minor differences in their approach. Your thyroid is a butterfly-shaped gland located in the front of your neck. The next thing I remember was sliding back to the cart to be wheeled to the recovery room. When I got home around 2pm Tuesday I had never felt more comfortable in my house. Again, my surgeon only says it's normal with minimal to no explanation whatsoever. 2 Sep end of my convalescence leave, and back to work. The mass was softball size and the cancerous tumor was 4.8 cm follicular cancer with hurthle cell varient, since August 2012 I have had a partial thyroidectomy, TT 2 weeks later, RAI 157 mc October 17th, modified neck dissection Nov. 27th and now it's the waiting from blood test to body scans and getting the meds adjusted just right, a lot of side effects with Levothyroxin. Family has been very patient with my mood swings, thank God! Cleanse the incision area the day after surgery. Seriously, I'd managed to get half a sip of water down in what was the most painful swallow I'd ever experienced and I now had to take half a dozen HIV antiretroviral and other pills. The PubMed wordmark and PubMed logo are registered trademarks of the U.S. Department of Health and Human Services (HHS). These symptoms may persist for long . A few randomized trials, mostly using inadequately validated instruments, showed significantly reduced neck pain, neck stiffness, movement disability, and need for postoperative analgesics by applying neck and shoulder exercises after thyroidectomy [8, 21-23]. Although, some people swear they can't hear it, I can hear it all the time. Surgery took 6.5 hours and everything went well. Fever with a temperature higher than 101.5. Sent us home & said if it happens again that we need to see the ent in cleveland. Anyway this is what is going on now. The moment was really intense, as I didn't have a clue what to expect over the next several hours. Do to how well the first surgery I was not expecting any problems although I am always nervous about surgery. One local and one about 50 miles away at a major teaching hospital. This is the post I put online two days after surgery https://www.inspire.com/groups/thyca-thyroid-cancer-survivors-association/discussion/home-from-tt/ In any event, we went to the store when I got home and stocked up on ice cream, yogurt and pudding. I felt bad the first two days but that was it. Which is what I had expected because that is what I was told. Older posts I saw explain that because the facial nerve were cut and will take few weeks to months to heal. This community is sponsored by ThyCa: Thyroid Cancer Survivors' Association, an Inspire trusted partner. By 6:30 or so I was famished. I had quit my job to start graduate school last fall and then had to defer my graduate program to next year because I couldn't continue during the winter quarter. You might also have to take supplements after thyroidectomy to balance your calcium levels. All assured me that I would be in good hands and they would see me in a few hours. Given that I had what my doctor (the top thyroid surgeon in the region who does hundreds of surgeries a year) said was the biggest surgery he had done all year, my recovery was much worse than what most peoples should be. Parathyroidectomy cures almost all cases of primary hyperparathyroidism and returns blood calcium levels to a healthy range. I kind of learned quickly to tilt my chin toward my chest as I swallowed to lessen the pain and actually got the four HIV and a couple of other pills down. She says slowing down in terms of socialization and being tied to my desk more has caused me to have bad posture and allow the tension to really build in that area. Gen A, elik SU, Gen V, Gkmen D, Tur BS. This was an amazing surgery within seconds of becoming conscious I noticed how loud everything was. I still feel some prickling pain inside my neck and when i tried to lift my neck slightly from flat on my back the pain is still quite significant, I don't know if that means i'm still healing or whether i'll keep having the same issue. I also feel sad that my recovery has stagnated and I don't see any improvement in my voice or breathing. The effects of the stretching exercises on the participants' neck pain and disability, neck sensitivity, pain with neck movements as well as on wound healing, were evaluated at the end of the first week and at 1 month following surgery. The pain is in the natural curve of my neck, about 2-3 inches above the incision. RAI was determined to be unnecessary, though I see my oncologist every 3 months (had one scare where some of my lymph nodes blew up necessitating a CAT scan last year), my endocrinologist every 6 months, and have my neck ultrasounded every 6 months. Everything is looking good cancer wise they will tell me more in December when I meet with my endocrinologist. Went to Bremerton naval emergency and they put me on oxycoton and told me to go to Madigan on Monday I called the Mayo Clinic (all three branches MN, AZ and FL), the University at Loma Linda California, UC San Diego, UCLA, UC Irvine, The University of Miami, Baptist Hospital Miami, Jackson Memorial Hospital Miami, The Texas Institute of Thyroid and Para Thyroid Surgery (Dr. Kuppersmith) and am sure a few more that escape me right now. Anyway - I am still alone in hotel away from Family after RAI. I met with two different surgeons. Reprinted with permission. They seemed as entertained by me as I was them, since most of the patients are far more groggy. The only problem I had with the surgery was hiccups that lasted about 10 days, I was told this was due to the tube they put down your throat during anesthesia. Again - very minor things that don't inhibit me from doing what needs to get done. So the procedure was to do partial thyroidectomy, and biopsy during surgery, then removed rest if cancerous.
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