When doctors cant help, they use whatever extreme methods might be available regardless of the harm that is done. Single issues are also available to purchase on our shop, Select a subscription duration Her work aims to expose the institutional corruption which is a source of profit for organized psychiatry, and to abolish state sponsored human rights violations, such as murder, torture and slavery. ECT ruined my life. Then amazingly normal sleep returned and never voices anymore . Above them, only the devil. It insists its use of the treatment is within NICE guidelines. contact IPSO here, 2001-2023. Disinterest in socializing or activities. ECT erased the memories of most of my life away. Your brain just lets you down all the time.. However, the risk of death is minimal. It is also functioning in everyday life that is effected. By accepting all cookies, you agree to our use of cookies to deliver and maintain our services and site, improve the quality of Reddit, personalize Reddit content and advertising, and measure the effectiveness of advertising. Its hard not to hate myself for doing enough treatments to fuck me up, but not enough to fix me anyone got anything encouraging for me, or did I truly and surely ruin my own life? The last few weeks I've been very symptomatic . I have constant memory loss, says Luff, who previously worked as a care home manager. Theyve done everything they possibly could ever since to attempt to discredit me and prove that what I have done couldnt possibly be real. The efficacy of two forms of ketamine treatments for depression is compared. As a clinician, I am satisfied that its a very good treatment, but I will never be complacent. This is the sad history of ECT. Nor did he envision them holding hearings, he said, because they held hearings in 2011. My father had suffered from a deep, intractable depression that wasn't responding to medication. Try calling your local SPCA. If you have severe depression after having a baby, ECT might make it easier to care for and bond with your baby. The memory loss, the physical malaise, the nausea and headache despite medication made things worse instead of better. All times are GMT-5. Ask questions, share your experience, or discuss new advances Your email address will not be published. lilyboo, your life is not ruined, i am sorry for you and just maybe things will work out,but i do know i got this 3 years ago yesterday and i am doing things i never thought i would do again,most of the time i forget about it,brain adaptation as my doctor said it would,but yes, i have to wear plugs for theatres,cutting grass,that stuff,i very much enjoyed playing in rock bands for many years . Hello Surviving2015, and welcome. After the ketamine infusions didn't work, my psychiatrist recommended electroconvulsive therapy. She has PTSD and memory loss from these treatments. ECT is a simple procedure, but many precautionary measures must be taken before the pulse of electricity can be given to produce the seizure. If I want to be bleak I can talk about how I . My memory was significantly affected, each time. It is a sad thing to see, and to witness happening. When I was in grad school I had an existential crisis related to my career choice, a bad marriage, drug use, and a spiritual emergency. Cookie Notice I did, even though other folks told me I was nuts to do such a thing. BTW, I sent the link to a number of people, including a few radio stations and any media I could think of. By accepting all cookies, you agree to our use of cookies to deliver and maintain our services and site, improve the quality of Reddit, personalize Reddit content and advertising, and measure the effectiveness of advertising. Thank you for your support. And dont give me that claptrap about how its been made safer by use of anesthesia! But Ive talked to quite a few others who have had ECT, and they all experienced memory issues. She did submit and paid a vicious price for that act, compliance., My sister suffered and is permanently impaired from this treatment!! Met Gala 2023: Stars celebrate Karl Lagerfeld, Shooting suspect was deported four times - US media, HSBC says 1 bank buyout boosted profit by $1.5bn, King Charles to wear golden robes for Coronation, Yellen warns US could run out of cash in a month. At one time he was unable to recognise his own parents. Or, alternatively, they are just that stupid they cannot see the truth or comprehend the science. I have a few friends that committed suicide after receiving that violent procedure. FDA PLEASE DO NOT DOWN GRADE THE SHOCK DEVICE TO A CLASS II FROM CLASS III.. This is understandable: as a doctor, you want your patient to have the best treatment for their condition, and finding the words to describe ECT and its adverse effects is hard. They all cited just one article that said, Safe and Effective, and that one article was very carefully debunked by all the survivor comments. I am twenty-one years old and I had electroconvulsive therapy done. The serotonin theory of depression has been called into question recently. The patient is first given anaesthetic and muscle relaxants before putting in a mouth guard to stop them from biting their own tongue. Brilliant. I know from personal experience. The Mayo Clinic website describes TMS as "a noninvasive procedure that uses magnetic fields to stimulate nerve cells in the brain to improve symptoms of depression." They make it sound simple enough: "An electromagnetic coil is placed against your scalp near your forehead. Off on a bit of a tangent, but are there any ECT victims who have found ways to help remediate their brain damage? I am now on SSDI due to brain damage. The last one in 2008. Its only recently that I remembered that I am able to go out and buy things. The paper concedes that "the severity and significance of the brain damage and memory loss (following ECT) is rarely studied". www.laurentenney.us, MIA Webinars and Other Educational Events, Antipsychotics for Psychosis, Bipolar & More, Lauren Tenney, PhD, MPhil, MPA, Psychiatric Survivor, Epidemiologists Decry Major Problems in US Psychiatric Practice, The Germanwings Crash: Flying Under the Influence, Global Mental Health Agenda Fails to Address Psychoses in sub-Saharan Africa, Says New Report, Researchers: ECT Study in Children Methodologically Flawed, Ethically Concerning, https://www.regulations.gov/searchResults?rpp=25&po=0&s=1k0-8oqo-69e7, https://www.optimallivingdynamics.com/blog/14-powerful-ways-to-form-new-synapses-in-the-brain, Campaign Against ECT Gains Traction in UK. Julie with, from left, Dr. Ahmad Raza, Dr. Shawn McClintock and Dr. Mustafa Husain. Has anyone tried hyperbaric oxygen therapy or holistic approaches that provide even minor benefits? His work with NAMI had become Human Rights centered. Drs must not be allowed to do any harm. Its about time that the harmed peoples stories were listened to and we got rehabilitation and support., Photo: former writer Luff was bed-ridden for four years. Its cruel., Because my niece went through ECT and it caused her permanent brain damage. And while ECT techniques have allegedly been improved, giving a shock to anyones brain is a very intrusive practice, inherent with unintended side effects and potentially causing permanent damage., I found that my daughter was threatened with a long term stay if she did not submit to the demand. The program allowed me to take one or two classes at a time. And apologize to those of us still living for doing the crap they did. Can Consciousness Exist Outside of the Brain. and our All symptoms of a brain injury. For someone who has herself not been injured by shock, but has the sensitivity, insight, and compassion to fight on behalf of those who are usually too damaged to do so is inspiring. I have difficulty doing things that used to be second hand to me. It only has made things worse. Count me in. Its the creation of a concussion disguised as a treatment. Id been left so damaged that I didnt know how to count money out. He explained to me that even though it was arbitrary, they had to close the period for comments at some point, and that the FDA would not be reopening the shock dockets. I do not remember the geographic layout of Seattle my home town. An MD wrote on his facebook page: ECT causes brain damage. I know several people who were never the same after this treatment. At those crazy anti-ECTers!! I used to have a photographic memory. I used to be known as a pretty smart person - safe to say Im dumb as a rock. Mixed berry, strawberry, blueberry, and even peach! I do not remember much about the 1980s or 1990s. . Exclusive: Figures fuel calls to ban or suspend use of electroconvulsive therapy on NHS Hi Folks, After a bit of red tape mix-up, my comment is finally up there and visible. ECT destroys social bonds. But it would be electroconvulsive therapy (ECT) in 2016 and 2017 that would ultimately set the 47-year-old on a path toward remission and back on the stage. Its easy to blame ECT for difficulties that might have happened anyway. It is utter unscientific rubbish that should be banned. 12 to 16-ounce bags of frozen fruit. I had been fully compliant and never refused anything, fully cooperative, responsible, never late and never a no-show. They made good money off of me, since they kept their numbers up at the clinics. She might have recovered if her brain hadnt been damaged by the ECTs. Try, keep trying, and when you spill milk, laugh. Most ECT success stories never hit the news. Please stop this!, Because my friends were severely badly affected after this treatment. ECT also appears to change how parts of the brain that are involved in emotions interact with each other. It should NEVER be used for ANY reason, but particularly in people who are already vulnerable due to mental illness. ECT was an horrific procedure with catastrophic results. This determination can be made without public hearings? I can no longer take care of myself & finding a reason to push forward is uprooted by simply looking in the mirror, and no longer knowing the soulless fragment of a man I no longer know. PostedApril 24, 2015 Create pretend play cool classic carnival treats with this sturdy wooden tabletop snow-cone and slushie stand. I can just hear the oh, yes, well, must be the benzos, the anesthetics, the anti-psychotics, the disease state, the coffee they have been drinking, the phases of the moon, somataform disorder, aliens, conspiracy theorists., basically anything but the electrical lobotomies decimating people being assaulted by ECT creating traumatic acquired brain injuries. Brains injury is not a treatment. ECT was first used in the 1930s to treat patients with severe depression. I feel I was used as guaranteed money for the hospital., My aunt nearly died having this device used on her., My father received a series of shock treatments. How Historical Trauma and Racism Impact Mental Healthcare for Native American Prioritizing Psychiatrized Individuals Knowledge and Agency in Mental Health Discourse. A button is pushed and between 180 to 460 volts of electricity sends a current searing through the brain from temple to temple (bilateral ECT), or from the front to the back of one side of the head (unilateral ECT). The medical community completely minimized them. Both are issues which are ripe for coalition building as well. And simply trial and error. I googled it and found some NAMI blog about safe and effective, and I didnt research further because I trusted the medical industry in those days. Family and friends noticed the difference reminding me NEVER to agree to be shocked again., My mother was a victim of ECT and was never the same again. ECT permanently impairs memory and causes other long- term signs of mental dysfunction such as difficulties with concentration and new learning. And your brain just lets you down all the time. "Electroshock treatment has ruined my life. Each time you pick yourself up, think of the muscles you are building. I don't feel suicidal in this moment, but OBGYN and parents urged hospitalization yesterday. During electroconvulsive therapy (ECT) patients are put under a general anaesthetic and a paralytic and then an electrical current is run through their brain. Equal parts terrifying and evocative, Roth exposes the real-life horror of paranormal survivors dragged to hell and back. inaccuracy or intrusion, then please By the same token, medications involve messing with the brain, and the consequences are unpredictable. They have told me they just feel robotic toward life., 15 High Voltage Electro Shock Treatments were forced on me as a teenager. So sad to think of the number of new victims of shock since 2011 when the FDA, listening to similar compelling testimonies of devastating injuries and harms, did not have the intelligence, balls, common sense, compassion, or ethics to completely BAN this torture device and relegate it to the scrap heap where its sleazy, greedy, ignorant, violent, undereducated, and immoral promoters, administrators, and practitioners also belong, stripped of medical licenses. He visited facilities and demanded to speak directly to patients, knowing that only patients would give him accurate information about the state of human rights at these places. We live in a society where certainly psychiatry is dominated its dominated by men, but ones point is it is dominated by male ideas. He told the BBC: "It's not in any way addressing the cause of their depression. The study's joint author, Prof Irving Kirsch, an expert on placebo effects based at Harvard Medical School, says "the failure to find any meaningful benefits in long-term benefits compared to placebo groups are particularly distressing. The memory loss, the physical malaise, the nausea and headache despite medication made things worse instead of better. Sharing my experience is a small way to thank the professionals who saved my life. Scan this QR code to download the app now. With ECT, Ive defied suicide, living 14 lucky years beyond my attempts of 2001. Julie Hersh is the author of Struck By Living: From Depression to Hope. A woman who was administered controversial electroconvulsive therapy (ECT) is campaigning to ban the mental health treatment. I feel my depression has a 15 lb weight in my chest. She said, They shocked everyone there. This site is part of Newsquest's audited local newspaper network. Sounds dramatic Im assuming, but I am far from!, I had ECT several years ago and have had noticeable cognitive problems since and ECT does not reduce suicide risk., ECT treatments caused a huge change in my life. Annually in the United States, approximately 38,500 people die by suicide. This is how the system works. VideoOn board the worlds last surviving turntable ferry, I didnt think make-up was made for black girls, Why there is serious money in kitchen fumes. Unfortunately it is the standard of care. Leave it to psychiatry to promote brain damage as a mental health benefit.. Electroshock is a barbariac practice that needs to stop!, I know electroshock survivors, and Ive been on a psych ward while it was being practiced on my friends. I did not gain relief of my depression as a result of the ect., I have received ECT and personally know the damage they can do and they are definitely NOT low risk!, ECT is, by its very nature, contra- indicated for ANY diagnosis for which it is currently perscribed. Please post and forward it so that people might obtain some balanced information about ECT. Consequently, people try to think through an experience to better understand a problem. Psychology Today 2023 Sussex Publishers, LLC, Dr. Ahmad Raza speaks at an event for ETC education. reported in the Journal of American Medical Association in 2001 that 61% of the patients treated with a combination of medication and ECT were in remission at 6 months. Despite her straight-A record in school, young Ashley she tried to end her life more than once. New research, reviewing huge bodies of scientific evidence, found no direct link between serotonin and depression. Oddly, though, throughout it all, and for many years after, I had no clue that the 18-or-so months of severe and rather mysterious illness I went through following shock I did not realize was at all a result of the shock. ..its hard to say anything to him because he ordered the ECT .he says 25 percent of his patients are stuck in a depressionhmmm he must suck as a doctor !! She said: "I got really ill and I thought I was Jesus in the time leading up to the ECT treatment. The ECT application consisted of intravenous, short-term anesthesia with propofol and muscle relaxation with succinylcholine, while a brief electrical stimulus applied to the brain using external electrodes induced an epileptic seizure over several seconds, which is the core feature of a curative effect. . Or 1000 real life stories from people who have been there? And it is deplorable that treatment resistance, to psychotropic drugs known to have harmed and killed millions in recent decades, prescribed for made up and scientifically invalid diagnoses, is being used as a rationale for shock treatment. Ill join in demonstrating to stop electro shock wherever and whenever possible for me to do so, coercive psychiatry as well . I had very impaired memory, emotional reasoning and cognition for many years afterward Like 14 years now. When will they stop committing crimes against humanity?? 2. Unfortunately, my parents nor I did a lot of research before consenting to this treatment. 29-year-old Ashley Clayton suffered from chronic major depression after suffering serious trauma during childhood. Both electrodes are placed over the temples, overlapping the frontal lobes of the brain. Bolton is the program director of McLean's Psychiatric Neurotherapeutics Program. I wasnt told all the possible risks. In the UK ECT will usually be suggested if your condition: Research shows that it causes the release of certain brain chemicals. High school giddiness and shallowness at its best?? Before ect i was working after ect, i was on disability. I think they should be required to take a course of 10-12 ECT as part of their training for certification to administer shock. 30 Apr 2023 15:21:44 I survived that . Reprints. As noted above, my sense, based on my research, is that MKULTRA-style mind control abuses derive from three main sources: 1) Satanic Ritual Abuse, or SRA (probably synonymous with Jewish Ritual Abuse), which has been practiced by elite families within the context of secretive cults for millennia and 2) the findings of British, American, and Nazi psychiatrists since the late 1880's, and 3 . My mom died last August. I have had courses over the years to treat psychotic depression, initially when I was pregnant with my first child, and most recently three years ago. I lost my mother on my 15th birthday., I have a very good friend that went through over 80 ECTs. !, I was given electro shock and I signed when I was in a coma like state. But it sure made a lot of money for the doctor. As the years go by I now have a form of amnesia due to the shock therapy, please make them STOP!. People who saw me as something other than a diseased thing to be profited from. 3) Restored my dignity. A British family were left horrified after their dream Mallorca holiday turned into a bed-bug-infested nightmare. When I was young BP (before psychiatry) just 16 I like so many of us was brilliant in heart , mind , and spirit and filled with a tireless energy . Lets ignore the other 6 or 7 completely destroyed. The treatment is still offered by South West London and St George's mental health trust (SWLStG), which covers Kingston, Merton, Richmond, Sutton and Wandsworth. I know, as I was given many shocks without my consent. In 1983, Beryl went to her GP's suffering from back pains. I made a few suicide attempts and then ended up in the shock jock hospital in town. The article argues the quality of previous studies into ECT is so poor, they "were wrong to conclude anything about efficacy, either during or beyond the treatment period". I agree with you. People with traumatic brain injuries often go around with that goofy smile on their faces and this is an indication that something is badly wrong. Thats why Ive signed this petition!, Patients, myself included are not given full disclosure upon obtaining consent. Will the FDA have to justify or explain the reasons for their decisions? I also witnessed my dad go from being grouchy and withdrawn to become angry full of rage and would have frequent outbursts of rage usually directed at me even if I hadnt done anything more than walk into the room. For the record, AFTER my ECT, I complained that there seemed to be something wrong with my brain. Youve got mail became a joy to me, just as decades ago, my daily trip to the mailbox had been the best part of the day. Have seen 2 neurologist now too. 2023 BBC. It's been a hard burden to bear the past 15 years. A mum of two talks about having electric shock therapy while pregnant. NICE says their guidance for ECT was last reviewed in 2014 but it would look at it again if new evidence was likely to affect their recommendations. These posts are designed to serve as a public forum for a discussionbroadly speakingof psychiatry and its treatments. Rebecca Lawrence is a consultant psychiatrist, In the UK, the charity Mind is available on 0300 123 3393 and Childline on 0800 1111. I cant read or retain information. In March 1998 I tried my first adult ed writing class. Read about our approach to external linking. Terrible heartburn in chest and throat ..nausea.. abdominal pain as well as back pain and chest pain. When will the psychiatrists stop committing crimes against humanity? After months of counselling Cunliffe was eventually able to come off medication, and although she has never been able to return to work she has carved out a new role as a campaigner, fighting for other ECT patients who have sustained life-changing injuries as a result of their treatment. My new neurologist who's alot more knowledgable and caring asked if I'd try brivaracetam, he mentioned it was very similar to or basically like a new keppra just no Genaric name out where I'm from. There are some who say it does, but do they really remember for sure? For me, its as though there are big holes in my memory before and during a course of treatment. Maybe even surrounding shock box making companies . Yes, ECT is always described as a last treatment option. And even many of the protesters suddenly, quite illogical stop responding and become silent. Depression: Goodbye Serotonin, Hello Stress and Inflammation, How Blame and Shame Can Fuel Depression in Rape Victims, Getting More Hugs Is Linked to Fewer Symptoms of Depression, Interacting With Outgroup Members Reduces Prejudice, You Can't Control Your Teen, But You Can Influence Them. Electroshock erased almost all memory of an almost 25-year career as well as my college education. She now has very poor memory., 31 continuous ECTs spanning 4 months has ruined me forever. I was thrilled to assist with this article, and a friend of mine who is a professional in the field participated as well. Mental illness, like heart disease, is a chronic condition, often aggravated by unhealthy lifestyle choices. The chapter W in Newness book is dedicated to women. Download and subscribe to the Street News app today, for unlimited access to stories that raise the voices of marginalised communities around the world. (1) 2021 16+. Cookie Notice I was diagnosed with ADHD when I was 8 but my family told me that . Eventually Cunliffe was referred to a neuropsychologist who diagnosed brain damage as a result of ECT. The aftereffect undercurrent terror of electro-shock and psychiatry are never far from the surface . As part of the report, Freedom of Information Act (FOI) requests were sent to 56 NHS trusts. I will have it again, if I need to. The mind seeks an answer or meaning in any experience. As Ann Lamott put it, somewhat paraphrased, Hey doc, If you dont like what a patient writes about you, then you should have behaved, eh?. I listened reluctantly, thinking of all the other reasons there might be for that illness, age, medications. The editor encouraged me to shop my article to other news agencies. Description. In the US, Mental Health America is available on 800-273-8255. I know. Shock is not effective in relieving depression or anything else beyond the first few weeks after it happens, when the brain, having suffered an injury, is trying to repair itself and so it seems that the activity of the mind has changed. Nothing worked and I was still severely depressed and suicidal. It wasnt safe to live with him any more and even though he was grouchy and withdrawn before treatment I would have preferred to live with grouchy and withdrawn as opposed to violent and raging., Im signing because I am a survivor of shock therapy. (modern), Until we have another better treatment that works rapidly, I think there will be a place for ECT., ecently I spoke with someone who had, in the past, been given a large number of. I have lost memories. The State Power Triangle and My Spiritual Awakening, White Paper Presents Case Against Forced Treatment, Self-test for Adult Symptom Deficiency Disorder (ASDD). 1,211 likes, 86 comments - JoAnniiee B (@joanniiee.b) on Instagram: "This is my WHY! I only knew who my friends were because they kept coming in to see me. Life was worth living. So this week, I will be printing and sending all the petition signatures and comments to Mr. Ryan via registered mail, return receipt requested. However, peer-reviewed research published in the journal Ethical Human Psychology and Psychiatry concludes "the high risk of permanent memory loss and the small mortality risk means that its use should be immediately suspended". Jacqueline Dunn, 47, of Sutton, wants to ban the treatment she said has ruined her life and left her suffering with memory loss and other problems. Engaging with social media can affect users appearance satisfaction. That psychiatric atrocities stopped, it is first necessary to recognize psychiatry crime. SHe has suffered irreparable brain damage to her short term memory and she will never be able to live unassisted. For four and a half years I didnt get out of bed. This journal article from Dr. Alan E. Brooker . I remember standing in the kitchen thinking, should I be able to walk through a door without walking into a door frame, or have I always walked into door frames? says Cunliffe, looking back on a period that would change her life forever. These doctors should be held criminally liable for their unethical practice of denying risk. Also, people become compliant and they dont go around telling the staff how they hate the F***ing hospital anymore. Nobody consciously, voluntarily accept this can not be! Mad in America has made some changes to the commenting process. And yes, there is no doubt the majority of people would recover or heal without being administered multiple traumatic electrical head injuries via shock. What is the difference between solitude and isolation? The brain can heal: https://www.optimallivingdynamics.com/blog/14-powerful-ways-to-form-new-synapses-in-the-brain. Feeling . From feeling entirely hopeless about the future, my mood lifted with each session. RT @KellyMartin02: Please cite your source for the 80-90% supposed "response". One of the reasons they stopped keeping them is that they reveal the amazing difference between places in terms of the amount of the number of treatments that are given, he says. They have a stare in their eyes, where their eyes dont move like a normal persons. Read about our approach to external linking. I dedicated my first published book to my dads memory, and my second published book to the memory of my boyfriend. As for shock, I believe that well before graduation, those experts at McLean were plenty shocked. By the time I was starting my freshman year of college, I had been on over thirty combinations of medications, been in three partial hospitalization programs, had two psychiatric inpatient hospital stays and tried ketamine infusions.

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